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How MAC patients have tolerated taking the 3 antibiotics

MAC & Bronchiectasis | Last Active: Aug 14 10:56am | Replies (84)
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@britchic

I couldn’t handle the 3 drug therapy so discontinued the riamfaprim. Sadly after 18 months of taking antibiotics I still have Mac. I’m about to add to the therapy arikaycee along with another 18 months of antibiotics. I’m scared to death of the side effects of the arikaycee. And who knows how my gut microbiome is😢

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Replies to "I couldn’t handle the 3 drug therapy so discontinued the riamfaprim. Sadly after 18 months of..."
Mary | @mjb24 | Aug 3 12:19pm

I have been on Arikayce for 3 weeks and haven't experienced any side effects so far. I am far less fatigued and coughing less during the day so it seems to be helping. I am aware of the negative side effects and what to watch for but concentrate on all the encouraging reports I have read and maintain my hope that this will make a difference.

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