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@catpurrs123

Hi there. I am in the same situation. I have several issues ie heart and PN among others and cannot get into Mayo at all. Yesterday they told me again that Mayo Arizona is not accepting any more neurology appointments. Before that they said they were not accepting any more cardiac appointments. Have heavy athlerosclerotic calcification in my internal carotid arteries causing symptoms. I had Mayo for my provider before retiring several years ago and had excellent commercial insurance. They accepted me immediately then . I am now on Medicare with Aetna as secondary.

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Replies to "Hi there. I am in the same situation. I have several issues ie heart and PN..."

I would certainly challenge their decision of not accepting you claiming perhaps that you are an established patient. Contact Medicare and involve them then your State's AG office. I would not take the denial of care without some major push-back! Then again if you are near the West Coast there are several major Medical Centers that have wonderful reputations that you could request referrals!

I also a very disappointed that Mayo isn’t taking any new neurology patients.
I have been diagnosed with CIDP as far as the many doctors I’ve been to.
I have meant bizarre symptoms including bowel and ladder issues,loss of feeling in my feet and legs, numb lips and some facial numbness, can’t feel if I’ve had a bm , bladder leakage, numbness in my fingers and right hand just to name a few.
This all started 12 yrs ago with my tingling in my toes of both feet.
Had all the testing possible, mris, EMGs, spinal taps,bone marrow aspirations, etc
Had all the neuropathy meds I could along with IVIG infusions.
Nothing helped my symptoms, and MS was ruled out, as was Amyloidosis.
So imagine my frustration when I was told I couldn’t see anyone at Mayo in Arizona.
Very frustrating because my quality of life has gotten worse, can’t walk without cane or walker, my balance is awful and I can’t feel my feet.