← Return to Stage 3 chronic kidney disease (CKD): What specialists do I see?

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@gaybinator

Immunotherapy killed my husband's transplanted kidney. It was a choice between the cancer (the result of immuno-suppression after the transplant) or living on dialysis. Squamous Cell Carcinoma is common in KIDNEY transplant patients - they don't know why. When you get a transplant, you MUST stay out of the sun and see a dermatologist regularly - an informed and tenacious dermatologist. My husband's dermatologist was neither of those things. My husband's form of SCC is spindle cell, and it is as aggressive as melanoma.

I find the complete reversal of dietary guidelines interesting. Before, and for the two years after the transplant, it was water, water, water. Now it is 32 oz per day, and that includes the water in food.

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Replies to "Immunotherapy killed my husband's transplanted kidney. It was a choice between the cancer (the result of..."

@gaybinator, I'm sorry to hear about your husband's cancer. What a shame his derm wasn't better informed! You must feel so frustrated, among other things, of course. Keep us posted on his progress and please know people here are supportive.

@gaybinator Thank you for bringing up the importance of skin care after transplant. To lose a transplanted kidney because of the drugs used to keep it around, must be devastating. A tough place to be. I have met several people who have chosen dialysis over transplant, or who cannot be transplanted. My husband's transplant was almost three years ago, and it is a constant battle to get him to wear sunscreen. As a melanoma survivor, I know the value of vigilance.
Ginger

@gaybinator I think I may understand the "reversal" of dietary guidelines relating to water. When trying to save a kidney they want you to use it regularly and keep it flushed. Once the kidney is gone, those fluids have no way to escape and remain in the body; often resulting in edema and other problems. I remember meeting one kidney transplant patient whose favorite meal post transplant was grilled steak and brown pop.