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DiscussionStage 3 chronic kidney disease (CKD): What specialists do I see?
Kidney & Bladder | Last Active: May 19, 2022 | Replies (237)Comment receiving replies
Replies to "Immunotherapy killed my husband's transplanted kidney. It was a choice between the cancer (the result of..."
@gaybinator Thank you for bringing up the importance of skin care after transplant. To lose a transplanted kidney because of the drugs used to keep it around, must be devastating. A tough place to be. I have met several people who have chosen dialysis over transplant, or who cannot be transplanted. My husband's transplant was almost three years ago, and it is a constant battle to get him to wear sunscreen. As a melanoma survivor, I know the value of vigilance.
Ginger
@gaybinator I think I may understand the "reversal" of dietary guidelines relating to water. When trying to save a kidney they want you to use it regularly and keep it flushed. Once the kidney is gone, those fluids have no way to escape and remain in the body; often resulting in edema and other problems. I remember meeting one kidney transplant patient whose favorite meal post transplant was grilled steak and brown pop.
@gaybinator, I'm sorry to hear about your husband's cancer. What a shame his derm wasn't better informed! You must feel so frustrated, among other things, of course. Keep us posted on his progress and please know people here are supportive.