← Return to Everolimus for multiple Neuroendocrine tumors

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@sophiarose

I would like to thank you I am on PRRT and my second treatment side effects were horrible
Never was I told the dosage could be lowered!!
Anyway I was on Everolimus for 9 weeks November of 2023 to January of 2024
I started on the lowest dosage
Except for the severe fatigue which every treatment seems to give you it wasn’t so bad in the beginning
Then I started having issues with my heart was in the hospital my cardiologist told me to stop my oncologist told me to continue
Since I knew my cardiologist for 30 years I stopped
I continued to have issues with my heart and in February 2024 went to the hospital did a full cardiac work over and was diagnosed with PVC
I was put on metoprolol it worked till I started PRRT now I am struggling again I am currently on Nebivolol which is keeping my pulse steady but not lowering it but my BP is too low
I am not sure if Everolimus contributed to my heart issues
However there are people out there that have been on Everolimus for years with no side effects
We are all different
I believe that if you don’t take a chance you will never know
I wish you the best

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Replies to "I would like to thank you I am on PRRT and my second treatment side effects..."

@sophiarose Thanks for sharing your experience. Sounds like you’ve had some struggles, but you keep moving forward. I get that. But at 75 I’d like to not have so much to struggle with!
I’m a real controller, and know that I’m trying to control as much as I can right now. I agree that if I don’t try, I’ll never know.
Thanks for your response.