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My Bone Marrow Transplant (BMT/SCT) story: Will you share yours?
Bone Marrow Transplant (BMT) & CAR-T Cell Therapy | Last Active: 2 days ago | Replies (549)Comment receiving replies
Hi all,
Today i hit my 115th day post-transplant day. Below are two lines from two test results from my last BMB.
-Bone marrow aspirate: No abnormal myeloid blast population is identified.
-No abnormal myeloid blast or monocytic population identified
I like to say never just read them. Wait till you see the doctor. Today for my once-a-week visit, I asked the RN if she had more results from my test! I told her about my flea bites and my work to kill them, but what lotion best to use with my meds in mind. She was reviewing all my blood numbers which are mostly steady. Platelets up to 266. Red still a bit down but they have been stable there for months. The team is not worried. The doctor popped in and i asked him about my results!!!! I stopped tacro last week, so when my creatinine number was 106 the doctor said today is your baseline. Hydrate. The nurse already set me up to get hydration. If my flea bites turn into a rash all over, he said call me. That would be GVHD.
The two of them looked and said based on 2 components, one says it is 100% donor. The 2nd is 98%. She said over 90 is good for the 2nd so 98% is great. The Doctor is super pleased. Not with my hydration and my kidneys, but with how my body is doing. For today, the new 26-year-old fellow has taken over my body!!!!!!
My visits now go to every 2 weeks for a blood test and follow up.
I also got a call on the way there if i would like to have my MO appointment today instead of the 6th of May! She is very young. My MO i had through my treatment is at a different hospital. I am staying with her for now, as i complete my one -year post transplant!! I did get a dermatology appointment Nov 27th, with a possible cancelation if I stay on that list. My family has had melanoma and squamous. I cannot not go. I have to have a consult again as it has been 2.5 years. Advocate!!!
Replies to "Hi all, Today i hit my 115th day post-transplant day. Below are two lines from two..."
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Hey @katgob! Can you believe it’s day 115 already?? When you’re at Day 0, anything past 100 seems like it’s forever away. You’re doing great!! Loving those two lines from your last BMB. 😉 I think you and that ‘26 year old bone marrow’ are making a great team!
Oh my gosh, flea bites? They itch like the dickens. If I haven’t mentioned already, our dog had picked up fleas one summer from bunnies in the backyard! I was aghast!! We’d had dogs for years and never, ever had a flea.
Fleas are incredibly difficult to get rid of because they lay eggs in carpeting and furniture. We finally got rid of them by using Food-Grade Diatomaceous Earth. It’s a fine powder that you can sprinkling on carpets, use a broom to sweep into the carpet and then let it sit for a while then vacuumed thoroughly. It’s not toxic! But it destroys eggs and kills fleas. Because you’re so new yet into the transplant, should wear a mask when using it. Here’s a little blurb about diatomaceous earth.
https://www.thebugsquad.com/fleas/diatomaceous-earth-fleas/
As for your hydration…not sure if it will help you or not but I found that drinking room temperature water helped me get down my required 64+ ounces a day with no effort. Room temp is also utilized better in the body. Just a thought…
I have to ask, what is a MO treatment? I’m not familiar with that term.