← Return to Looking for Support in DC
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Replies to "Thank you ...a lot of good info there .. the bradykinin connection may be why one..."
Good, chessd, and at the same time, venture forth into all the literature you can consume about COVID and the cluster of symptoms you´re experiencing, because soon, thereby, you will know more than any of the long-COVID specialists I have ever heard or read about. In the thiamine-focused community, the thinking is that infection (e.g., COVID, other viruses, bacterial infections and sepsis, etc.) is one of many potential stressors that can throw autonomic nervous system function off, yielding or exacerbating an individualś dysautonomia. And, very dismayingly, Dr. Lonsdale also began to suspect particular vaccines as thiamine-correctible causes of dysautonomia (resembling long COVID), with Gardisil, for HPV prevention, serving as the focus of his case studies in the area. My take on the possibility that COVID vaccines could appear to have set some of us up for long COVID is that BECAUSE these vaccines surely did NOT trigger long COVID in the overwhelming number of vaccinated persons in our population who never got long COVID, it would actually not have been the vaccination that set us up, and was, rather, a pre-existing thiamine-mediated disorder that we had before and when we received the possibly stress-inducing vaccination(s). This reasoning keeps the door open, for me, regarding updated COVID vaccination, something that may still be needed for preventing acutely life-threatening disease. And the vaccination connection does not alter in any way my commitments to thiamine therapy and bradykinin normalization. (P.S. And I have to believe, at this point, that bradykinin elevation resulting from use of particular prescription drugs is itself a manifestation of an underlying dysautonomia that is potentially correctible via thiamine. That said, finding the perfect B1 protocol for oneself is no easy task. As of today, I am swearing off any thiamine source other than allithiamine (naturally occurring TTFD) after developing one paradoxical reaction after another (most respiratory) while attempting to use B1 HCl as my main thiamine source for several months already. I am also learning the hard way to resist the temptation to go high. Some of us are so wrecked by dysautonomia at this point that we react adversely even to low doses of thiamine. BUT this does NOT rule out that any one of us may find complete relief from our symptoms on prolonged LOW doses of thiamine. So remember to start low, move up very gradually and slowly, and don´t add more thiamine so long as one is experiencing improvement. Oddly, this parallels some pathways followed in classically prescribed homeopathy, homeopathy being famous for its confirmatory aggravations (paradoxical reactions).)
Oh I'm so sorry. I live IN DC in a high-rise and a neighbor reported that they'd seen another neighbor picking up Paxlovid at a nearby pharmacy - and yes, the other neighbor has COVID. It's out there and this region, based on wastewater since cases are not reported officially, is high.
Help: I wish I could say yes. I had 2 tele-visits w/ the Medstar Georgetown Hospital long covid clinic (?) they call it. I'm to see one of their docs in 10 days. The appointment is only for one of the symptoms; I was told the doc would discuss all.
Have they been helpful? Not at all. The doc I'm going to see I could've found on my own. More, my symptoms have been, from the start (late March 2023) different from most. It was here that I finally found a few people with some of my symptoms.
Sending hope, regardless of how awful we all feel. Sen. Sanders introduced legislation: https://www.sanders.senate.gov/press-releases/news-sanders-introduces-historic-moonshot-legislation-to-address-the-long-covid-crisis/