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@rosemarya

carnes, I am equally confused by your situation. I admire your desire to get things explained to you so you know what is going on. That is the best hope we all have. Unfortunately, not all professionals feel the same way. So, my only thought/question is to ask you to consider taking someone with you on your appointments as a 2nd set of ears and voice. Who could do this with you. Your best bet would be someone who could be a consistent companion at the appointments. With your husband working, maybe you have someone in mind.
2nd thought/question - How about having this person make your calls and inquiries for/with you.
Does any of that sound possible? What do you think?

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Replies to "carnes, I am equally confused by your situation. I admire your desire to get things explained..."

@rosemarya, I know a lady who carries a small battery-operated pocket recorder and lists her questions on it as they occur to her. She also takes it with her to medical appointments to record doctor's instructions, etc. And many health providers will give you a print-out of your visit, summarizing what was discussed, what was decided or advised. Some clinics even have an online patient portal where you can look up your visit reports, lab values, physician's notes, email your doctor, etc. Not all offer this, however, so using a pocket recorder might be a good strategy. I think Walmart has inexpensive ones and a lot of the newer cell phones have a recording feature.