Dear Lisanne,
I am very sorry to hear of your two decade long journey with OP. I assume you have a very skilled and knowledgable doctor to guide you. ( if not, find one - mayo clinic or bone specialty group ) My OP is not primary - and it is excerabated by metabolic and genetic issues. My foot fratures ( over the course of 6 years) in both feet included metatarsal, calcanesous, talus, cubiod and cuneform bones - so all the bones of the feet were weakened. That is not charariteristic of OP - however improving bone quality will help and has helped them. Thank God. I used a Exogen machine, mind body visualization, to help healing and was on tymlos ( still on tymlos). Your situation with early onset OP is unque so get the best care you can. I suggest reading Great Bones by Keith McCormick ( he still does counseling if you are intersted) so you get began it understand bone metabolics. As offered in above post the below two articles are helpful in understadning bone markers so you can ask questiosn about your current levels ( and make sure you took the test correctly at the right time and being off certain supplements.)
I send you psoitive energy for your healing and postive outlook for a healthy and happy future.
https://www.mayocliniclabs.com/api/sitecore/TestCatalog/DownloadTestCatalog?testId=83175
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https://food4healthybones.com/wp-content/uploads/2022/10/The-Importance-Of-Bone-Markers-With-Dr.-Keith-McCormick.pdf