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Intensive Care (ICU) | Last Active: Sep 16 7:52pm | Replies (609)Comment receiving replies
Replies to "Great article, @lamphey. How did writing a diary of your ICU experience help you? Why would..."
Apologies if I have misunderstood your question but I didn't write the diary. I wrote an article based on the diary that was created and maintained by my partner at the time.
An ICU Diary or patient journal can be a valuable therapeutic aid in the patient's psychological recovery. Many former patients, no matter what the source of their admission, are left with no memory of their time in ICU or they have a fragmented and delusional recall of events, where they are unable to determine what is real and what is imagined. This missing time or having memories of a life you didn't live is disturbing and can put you on a pathway to PTSD diagnosis.
There are three different elements to my ICU Diary, the day-to-day journaling, photographs taken during my coma while both on and off ECMO and my written notes from when I was unable to communicate verbally due to the trach. Each one provides a different perspective of my ICU experience.
The bulk of the diary is the day-to-day journaling, which covers the first fifty days of my hospitalisation and has allowed me to create a timeline of events so I can anchor my experience in reality
The twelve photographs add a layer of reality that augments the written words and emphasises the severity of my illness.
I find my written notes the most fascinating to look back on because I am not relying on someone else's interpretation of events. These notes were written in real-time, by my hand and putting on paper my thoughts in that particular moment.
My ICU Diary is one of my most treasured possessions and nearly fifteen years later, it continues to serve as a grounding mechanism when PTSD and depression tighten their grip and I find myself struggling to move forward.