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thanks for the link. I just only read the abstract. They do see a good correlation
of Reiff-score and disease severity. So its useful to ask for your Reiff score.
I was mostly relying to the BSI-index, which seems to be the best predictor.
I get an estimated 15 , see my screen-name here.
I found my life expectancy reduced from 15 to 5 years, that's
why I'm here ....
But I feel a bit lost here.
Atypical.
No MAC, no asthma, no COPD, no airway clearing
But breathlessness and lots of mucous in the afternoon,evening,night
which strangely improved a lot some days ago, maybe by diet..
I sent email to the main German Bronchiectase Center , MHH - no reply.
And now I just get a reply from U of Freiburg
that they only advice foreigners, no Germans.
Strange. Must be the German telemedicine-laws
Replies to "thanks for the link. I just only read the abstract. They do see a good correlation..."
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It appears the German Brochiectasis Center, MHH is no different than many health facilities. The facilities do not reply as soon as we hope they would. Keep trying with knowing all health facilities, it appears, are overwhelmed. We need to constantly stay on top of it all...and do much calling and follow up ourselves. Most important and fortunate for you is that you had the test and now know there is a problem that needs to be discussed and that you need to find out all that you need to do for yourself. Keep on, keeping on....you will get your information and appointments needed.
Greetings from across the ocean.
Barbara