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CT-interpretation

MAC & Bronchiectasis | Last Active: Aug 3 11:21am | Replies (10)

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@sueinmn

Are you located outside of the US? If not, there are many options for finding pulmonology care, including facilities like Mayo Clinic, National Jewish Health and University of Texas at Tyler, among others.

Knowing the type of bronchiectasis, without a complete evaluation of other factors such as cough, fatigue, infection status and overall health, does not indicate the severity of your condition.

Please read read what this study says about relying on the Reiff score:
https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11092240/
Specifically, they caution: "The Reiff score, based on subjective evaluation of bronchiectasis features, fails to capture the diversity of the disease. It has the potential to assign high scores to patients with localized but severe abnormalities while neglecting those with widespread yet less pronounced structural..."

Even seeing a pulmonologist unfamiliar with bronchiectasis is better than trying to self-diagnose. They would have access to colleagues and resources to help them evaluate your overall condition and recommend next steps.

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Replies to "Are you located outside of the US? If not, there are many options for finding pulmonology..."

thanks for the link. I just only read the abstract. They do see a good correlation
of Reiff-score and disease severity. So its useful to ask for your Reiff score.
I was mostly relying to the BSI-index, which seems to be the best predictor.
I get an estimated 15 , see my screen-name here.
I found my life expectancy reduced from 15 to 5 years, that's
why I'm here ....
But I feel a bit lost here.
Atypical.
No MAC, no asthma, no COPD, no airway clearing
But breathlessness and lots of mucous in the afternoon,evening,night
which strangely improved a lot some days ago, maybe by diet..

I sent email to the main German Bronchiectase Center , MHH - no reply.
And now I just get a reply from U of Freiburg
that they only advice foreigners, no Germans.
Strange. Must be the German telemedicine-laws