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Living with Neuropathy - Welcome to the group

Neuropathy | Last Active: Oct 27 5:51pm | Replies (6152)

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@bb0753

John, I have tried to post a new discussion and can not get it to post. It is quite frustrating. I would like to let others know about update to Winsantor clinical trials. They are getting ready to start phase 3 hopefully soon. http://winsantor.com/peripheral-neuropathy-and-our-drug/

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Replies to "John, I have tried to post a new discussion and can not get it to post...."

Hi @bb0753, I think your discussion is under review since it appears to be against Connect's guidelines due to the link to the funding for the phase 3 clinical trial for the Winsantor drug which is not permitted. From the guidelines number 5: https://connect.mayoclinic.org/blog/about-connect/tab/community-guidelines/

"No commercial postings, self-promotion, advertisements or solicitations.
Postings such as advertisements for your products, business, personal coaching, or medical practice will be removed.
Get-rich-quick schemes or solicitations for a charity will be removed. Unfortunately, it is impossible to verify the validity of each and every organization or personal fundraising campaign that solicits donations; therefore, to protect you from fraud, we must prohibit solicitations for charities.
Postings that promote products, coaching or events (videos, webinars, etc.) may be removed upon review. (See Guideline 1).
Journalists can submit interview requests to Mayo Clinic media relations at bureau.mayo@mayo.edu.
Solicitations for research must be Mayo Clinic and IRB-approved. Requests for product reviews, such as feedback on apps, devices, etc. are not allowed without prior consent. Submit your request for review to the Community Director.

I think it's OK to let folks know about the status of the Winsantor drug and link to their site but I don't think it's OK to ask members to donate to a fund for the clinical trial. They can read that on the site's updates pages. Also, there is already another discussion for folks to follow the status of the new drug.
-- Is there any update on Winsantor drug?: https://connect.mayoclinic.org/discussion/is-there-any-update-on-winsantor-drug/