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CT-interpretation

MAC & Bronchiectasis | Last Active: Aug 3 11:21am | Replies (10)

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@bsi15

no, pulmologists appointments are difficult to get here
and there is none who is specialized in bronchiectasis.
So I searched the web instead and found all the guidelines
and papers.
I'd like to know who here knows their BE-types,
Reiff score , lobes affected etc..
Nothing with keyword-search

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Replies to "no, pulmologists appointments are difficult to get here and there is none who is specialized in..."

Are you located outside of the US? If not, there are many options for finding pulmonology care, including facilities like Mayo Clinic, National Jewish Health and University of Texas at Tyler, among others.

Knowing the type of bronchiectasis, without a complete evaluation of other factors such as cough, fatigue, infection status and overall health, does not indicate the severity of your condition.

Please read read what this study says about relying on the Reiff score:
https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11092240/
Specifically, they caution: "The Reiff score, based on subjective evaluation of bronchiectasis features, fails to capture the diversity of the disease. It has the potential to assign high scores to patients with localized but severe abnormalities while neglecting those with widespread yet less pronounced structural..."

Even seeing a pulmonologist unfamiliar with bronchiectasis is better than trying to self-diagnose. They would have access to colleagues and resources to help them evaluate your overall condition and recommend next steps.

Your primary care provider should refer you to a pulmonologist bsi15.
Where do you live?? There are specialists at NYU and NYP Cornell and Columbia Presbyterien.
Maybe Mayo clinic can recommend one in your area.
Good luck!