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DiscussionCLIPPERS: Looking to connect with others
Autoimmune Diseases | Last Active: Dec 7 10:15pm | Replies (323)Comment receiving replies
Replies to "I’ve been out the hospital since July 12. Started on 60 mg prednisone for a couple..."
Hello @jamie72 Welcome to Mayo Clinic Connect! We’re glad you found the site. The folks in this discussion group are great and will happily answer all you questions (if we know the answers!).
Can you tell me who diagnosed you with clippers? And, have you had all the diagnostic tests: MRI, and maybe a brain biopsy? I do have to say, that clippers is not an easy disease for most. Some patients with little brain involvement, can get to a very positive point in the disease. As for me, I’m in year 6-7 and still have to work hard and pay attention to what I’m doing. I’m on CellCept and 4 mg prednisone (I’m trying to taper off, but it’s not easy.) I just started Rituxan which really made a difference! And, I get my 2nd dose this week! What do you hope will happen with treatment?