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PMR with normal blood markers

Polymyalgia Rheumatica (PMR) | Last Active: Aug 14 12:30pm | Replies (116)

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@shayp

I went to every doctor possible from rheumatologist to infectious disease and sadly they all just do blood work and look at results and not one could give me an idea. Than I developed a hammer toe and after steroid injections etc which of course did not help the hammertoes, my daughter recommended I ask for a steroid pack and the foot doctor gave me a prescription and a refill, and amazing the very first day of taking the first couple pills 90% of the pain in my joints had stopped with prednisone. Course I took the second refill and sadly did not continue any other things. 2 1/2 years later, while in a pottery class, I was telling an older woman about my experience and she told me she knew what I had told me it was polymyalgia rheumatica. It took just a normal average human to tell me what was wrong with me, so I put myself on a very low-dose of prednisone, which I buy in my travels, sadly that has been helpful. I was just disgusted why our doctors here did not have the curiosity to ask me further questions or listen. Please find a doctor that listens.

All of these eggs and pains in my joints has started about a few days to a week after I had gotten a big scratch on my leg from my dogs nails in the swimming pool, which I had not gotten out and cleaned up, before I knew my knees, my hip joints, my shoulders Are in such a pain, I did not want to get out of bed in the mornings, during daytime. They were decreased in the morning. It was just awful. If I had not gone to foot doctor for hammertoes during that time, I was planning to fly to Mexico for a day and find a doctor that maybe helpful and listen to the things that I was experiencing. Because here they just depended on blood test and if that showed nothing, they didn’t have the curiosity to research about my symptoms.

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Replies to "I went to every doctor possible from rheumatologist to infectious disease and sadly they all just..."

Welcome @shayp, I'm sorry to hear you haven't been able to get your doctors to listen. It's good to see that you are advocating for yourself to learn what helps. @dadcue shared a really good video in another discussion that you might want to watch here:
-- History of PMR -- Interesting video presentation from past to present.
https://connect.mayoclinic.org/discussion/history-of-pmr-interesting-video-presentation-from-past-to-present/
There are a lot of excellent rheumatologists that listen and I guess I was lucky when my PMR showed up that I got one of the really very good ones at Mayo Clinic Rochester, Dr. Thomas Osborn - https://www.mayoclinic.org/biographies/osborn-thomas-g-m-d/bio-20054469.