Recently diagnosed with Gastroparesis

Posted by lusi0610 @lusi0610, Jul 6 6:00am

Hello I’ve recently been diagnosed with Gastroparesis and have a question please. I read about a lot of you with g-tubes and implants. Can I ask how long did it take you to get to that point? I’m very scared to think this happens to most at some point.

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@001sarahsantana

Hello I was diagnose on 17 of July 2024, two weeks ago, My doctor recommended donperidone too. How do you get it? From what I know it is sold out of US. Any help would be appreciated.

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Hello You can order it online from Canada Drug . I did a few weeks ago and it went very smoothly BE sure to have your Rx from a GI. doc ready to upload, along with your ID
Choose express shipping to get it with 1 week

Good luck!

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@bkatz43

Hello You can order it online from Canada Drug . I did a few weeks ago and it went very smoothly BE sure to have your Rx from a GI. doc ready to upload, along with your ID
Choose express shipping to get it with 1 week

Good luck!

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Thank you for the information

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@001sarahsantana

Hello I was diagnose on 17 of July 2024, two weeks ago, My doctor recommended donperidone too. How do you get it? From what I know it is sold out of US. Any help would be appreciated.

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My Dr send a prescription to a Canada pharmacy, they called me I paid them after a long month it got here so for refills make sure you order in advance, your Dr needs to send script to the Canadian pharmacy, you can't get it a a normal pharmacy

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@palermo1

My Dr send a prescription to a Canada pharmacy, they called me I paid them after a long month it got here so for refills make sure you order in advance, your Dr needs to send script to the Canadian pharmacy, you can't get it a a normal pharmacy

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Do you know the name of the pharmacy?

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@peggyjean

I was diagnosed four yrs ago, but had symptoms much longer than that from a surgery for my hiatal hernia…. portions really matter & for me I eat frequently & small…. I don’t mix meat with other foods…. No fresh veggies or fruits…. If I do they are really cooked or baked…. Chicken, fish, eggs, or ground meats…. I actually can eat small amounts of steak occasionally, but not regularly…..mostly I nibble some of my husband’s….. Biggest help has been walking after eating…..life saver…. Cannot take any meds per RX. except Zofran will settle my stomach & helps if bloating gets uncomfortable….
Something also that helps is I fast most days & only drink coffee or tea for breakfast until about noon or so…. Usually there is plenty of food left in my stomach from day before….. I try not to eat past 6:30 pm, but do have plenty of fluids….. another thing is I don’t drink fluids while eating a meal…. I fill up too fast….. I did a lot of research on line & my own listening to my body…. My gastroenterologist was no help just dismissed me with if you can’t tolerate the meds, then I can’t help you…. From Mayo Clinic I found out that I’m lactose intolerant & that helped, but their dietitian was no help!!!! I knew more than she did through all my research & what I could tolerate from my own eating practices….. write it down & any symptoms that you did or didn’t have…. I know it helped me that I’m a retired RN, but when you’re the patient it gets real…. Remember though you are in control & work what works for you. Walking has been the real help & small portions….. Big Big….Family Support is My Biggest Support…. Good Luck….

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Just out of curiosity being a retired RN have you noticed doctors don’t seem to listen to you? That’s one of my problems. A doctor prescribed Effexor for neuropathy contraindications in several areas. One allergic to all seizure meds and the drug increases seizures. His response was I tried to help you there’s nothing else that can be done.

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@hopeful33250

Hello @001sarahsantana and welcome to Mayo Connect. The medication you mentioned is medication that needs to be prescribed by a doctor. Here is some information about it from the Drugs.com website,
https://www.drugs.com/domperidone.html
Did your doctor give you a prescription for this medication? Do you live outside of the U.S.?

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Thank you, I will contact my doctor to see if he wants to do that.

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I really appreciate the support of you guys. Thank you

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@001sarahsantana

I really appreciate the support of you guys. Thank you

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Your welcome

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@hopeful33250

Hello @001sarahsantana and welcome to Mayo Connect. The medication you mentioned is medication that needs to be prescribed by a doctor. Here is some information about it from the Drugs.com website,
https://www.drugs.com/domperidone.html
Did your doctor give you a prescription for this medication? Do you live outside of the U.S.?

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@hopeful33250 @001sarahsantana yes, drugs.com is a very helpful website. Gives you good information on all medications so I have registered with their online newsletter too. I even have all my drugs listed on that site, and it shows me if I have any interactions to them! They also have a pill identifier page which is helpful if you are not sure your prescription has been filled correctly with the right pill/capsule. I love that site!

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