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Headaches and EDS – Common and Painful Aug 6 9:13am | By Samantha Campbell (@samanthacmaa)
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@akalsas

Have suffered for 18+ years with headaches only when I’m sleeping which require me to get up take caffeine and could be once to three times a night just recently told that I could have EDS. How could tell I tell if these headaches are related to EDS? Have had MRIs that show nothing no history of headaches to age 62 and then they start to get worse in intensity and frequency. Thank you for replies.

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Replies to "Have suffered for 18+ years with headaches only when I’m sleeping which require me to get..."
Colleen Young, Connect Director | @colleenyoung | Aug 1 2:01pm

@akalsas, it is best to consult with a medical professional who specializes in Ehlers-Danlos syndrome to confirm a suspected diagnosis. To submit a request for appointment at Mayo Clinic's EDS Clinic start here: http://mayocl.in/1mtmR63

Here is an international Find a Professional database managed by the Ehlers-Danlos Society.
- EDS Healthcare Professionals Directory https://www.ehlers-danlos.com/healthcare-professionals-directory/

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mlball2000 | @mlball2000 | Aug 6 7:31am

I have suffered from migraines and headaches since childhood. I have found an electrolyte mix to be a game changer! I use LMNT or Liquid IV but I think any electrolyte mix is helpful. You can also make your own (LMNT provides their recipe for free on their website). I now drink 16 oz. of an electrolyte mix between 4-5pm and it has drastically reduced headaches in the evening and next morning. I hope this is helpful and I am sorry about the painful headaches that you experience, as well as the sleep disturbance.

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