@canadamom I’ve been following your Discussion and want to let you know that I can see how worried you are. I feel for you and if I were in your situation I would be wringing my hands with worry too.

I agree that memory loss in a 20-year-old seems very unusual and requires expert consultation. I had a consultant role in a Memory Diagnostics Center several years ago when I was a professor and we were never referred any patients in your son’s age group. The Center was affiliated with the Wisconsin Alzheimer’s Institute (I’m not suggesting your son has early dementia - only that these folks are experts in cognition and memory) and so I attended conferences and had many consultations with their experts. I have added the web link to the Wisconsin site in case you can find information or someone to consult with.

Wisconsin Alzheimer’s Institute:

— https://wai.wisc.edu/

Here is what I would like to see: A team of professionals who sit down with your son and his parents and take a very complete physical and mental health history. Then, following up on that history they would order scans and tests and that may illuminate cause and hopefully treatment. This team will spend the time needed to do this work with you and will require added appointments and follow-up.

In what province do you reside? Here are two resources in
Toronto where I have had contact with researchers:

The Hospital for Sick Children:

— https://www.sickkids.ca/en/

Baycrest The Rotman Research Institute:

— https://www.baycrest.org/Baycrest/Research-Innovation/Research-Themes/Alzheimer-s-Related-Dementias