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Anyone out there with Autoimmune inner ear disease (AIED)?

Autoimmune Diseases | Last Active: Oct 31 6:20am | Replies (228)
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@allycat2024

Can you remember the name of the drug the rheumatologist put you on.

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Replies to "Can you remember the name of the drug the rheumatologist put you on."
tinae | @tinae | Aug 1 9:05am

I was on methotrexate at first, then Humira. The Humira is keeping my heating stable

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shybee | @shybee | Aug 9 9:35am

Just curious..you said you lost one ear, then functional hearing in the other. I am deaf in my left ear from a left labrynthectomy they had to do because I was spinning in 4 directions at once. With your AIED, have you had the balance issues, as well as the hearing loss as I have? I don’t see people mentioning that, and while I have been a cochlear implant candidate for years, the vertigo aspect has been the much more disabling part of it.

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