Connect
← Return to Anyone taken Evenity (romosozumab) for Osteoporosis?
Discussion
Anyone taken Evenity (romosozumab) for Osteoporosis?
Osteoporosis & Bone Health | Last Active: 12 hours ago | Replies (1367)Comment receiving replies
I absolutely agree. My pain doctor wants me to wear the brace from the morning to the evening . I can’t imagine doing it. Not sure what I am going to do. The pain is burning/ stabbing. I remember you’ve mentioned that you had a few fractures. How fast they stop hurting? I had a vertebrae fractures almost 2 years ago, but I don’t remember they hurt this bad and healed pretty fast. This is very different continuing day and night pain. I am not sure how to get rid of it at least partially.
Replies to "I absolutely agree. My pain doctor wants me to wear the brace from the morning to..."
Did you have the burning/stabbing before you started Evenity? I took 11 doses of Evenity with increasing burning/stabbing mid back. Finally after 11 shots I bailed. After about 6 weeks it felt better. I started Fosamax and only had 2 doses because the back pain came zooming back. I stopped that one as well and will start Forteo tonight. The pain was awful really upending my life. I still have some discomfort but more like a 2 or 3 out of 10 rather than an 8. Good luck and I hope you find a solution.
Connect
@sunny65 my last fractures were three lumbar. The pain was unbearable. I was crawling on the floor. I live alone and couldn't function: cooking, laundry and of those things were almost impossible. I stayed in bed and only got up to go to the bathroom, and getting out of bed was agony. I learned to roll.
A physical therapist gave me free Zoom instruction on movements I might be able to do, after awhile (this was during COVID). I tried to walk as soon as I could, even if a half block. I did tai chi on my own when I could. Moving a little as soon as possible helped, I think, in the long run.
My fractures were mid-April I think and in 6 weeks I was considerably better.
It is now 3 1/2 years later after Tymlos, a few months Evenity, one low dose Reclast. I still have pain off and on. I believe a lot of it is muscles coping with the shortened spine: they spasm.
But overall you WILL feel better. I know very well the agony you are in. Do you have help? If not I would hire someone: I wish I had even if I had to pay.