@sandy23: I began Lutathera infusions in June ‘24 and looking forward to 2nd infusion next week. It was a very difficult decision choosing this treatment but so far so good. The infusion day was nothing bad but insist on the new 2 amino acids to be used before, during and after the radioactive infusion (bc I had NO nausea). The ONLY side effect I have had is being tired, less activity endurance and sleeping a lot. Drs watch blood labs and have option of reducing Lutathera dose or delaying next infusion until blood labs improved. Medicare pays.
Sandy, all your research is correct and I believe there is more chance of destroying net cells and shrinkage of tumors without significant side effects. My goal is quality of life vs. quantity.
I would be happy to share more with the patient if desired. Best days to come…