44 infusions of IVIG and had a little improvement with it, but lost vision in part of my right eye and got cateracs, that they say was probably from the cortocosteroids.
The rituxan seems to be working pretty well, after 3 infusions, one every 3 months, right after the infusion for about 2-3 weeks feel weak and tired but with PT and running in the pool 3 times a week , Ive gotten ride of the walker and occasionally even the Cain. Has anyone tried the new one vyvgart?? for their CIDP

Harley, I just got my first infusion of the Rituxan bio equivalent Truxima yesterday at our Scottsdale office. It went well. The infusion center is very comfortable and the infusion nurse very good. I actually felt better today than I have in months. I expected the opposite based on a previous experience several years ago. so am curious how I will feel going forward. It’s supposed to take 2-3 months to work, but I am grateful for 1 day of better energy and less pain. I so hope you have a good result when you start your treatment. I am temporarily increasing the frequency of IVIG from every 3 weeks to every two but will go off IVIG in 3 months if the Rituxan is working well. I hope your relocation goes well. I continue to be impressed with Dr Sivakumar, and I am very picky. I feel a ray of hope arising in me which is more than welcome! Take care!

Did the rituxan end up working? I was diagnosed with GBS in September 2024 after having my first baby. It came on during my third trimester. Now suddenly the doctors think I have CIDP. EMG shows significant axonal damage and legs and arms. I’ve been doing IVIG on and off ever since that but sensory wise have not improved at all. Motor wise, I have improved because I’m able to walk around my house and I was using a wheelchair and a walker for a while, I don’t walk normal tho I waddle around like a drunken penguin. Just so frustrated with this disease because it’s a long time and I have a baby to take care of. I am looking for any concrete answers from doctors, but I never get anything so I find myself, searching for people like you who are experiencing the same things.