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DiscussionCIDP (Chronic Inflammatory Demyelinating Polyneuropathy)
Autoimmune Diseases | Last Active: Oct 13 3:46pm | Replies (312)Comment receiving replies
Replies to "I am going to have my first Rituxan infusion in a few weeks. I hope it..."
Harley, I just got my first infusion of the Rituxan bio equivalent Truxima yesterday at our Scottsdale office. It went well. The infusion center is very comfortable and the infusion nurse very good. I actually felt better today than I have in months. I expected the opposite based on a previous experience several years ago. so am curious how I will feel going forward. It’s supposed to take 2-3 months to work, but I am grateful for 1 day of better energy and less pain. I so hope you have a good result when you start your treatment. I am temporarily increasing the frequency of IVIG from every 3 weeks to every two but will go off IVIG in 3 months if the Rituxan is working well. I hope your relocation goes well. I continue to be impressed with Dr Sivakumar, and I am very picky. I feel a ray of hope arising in me which is more than welcome! Take care!
44 infusions of IVIG and had a little improvement with it, but lost vision in part of my right eye and got cateracs, that they say was probably from the cortocosteroids.
The rituxan seems to be working pretty well, after 3 infusions, one every 3 months, right after the infusion for about 2-3 weeks feel weak and tired but with PT and running in the pool 3 times a week , Ive gotten ride of the walker and occasionally even the Cain. Has anyone tried the new one vyvgart?? for their CIDP