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Complications with Peripheral Neuropathy
Chronic Pain | Last Active: Sep 7 9:22pm | Replies (28)Comment receiving replies
Are you near a major medical center/research oriented facility? Neurologists specialize so one familiar with epilepsy, for example, will be unlikely to help with PN
And what to you think is the underlying cause?
PN is a symptom of something else, not always easily identified.
for some, major changes in diet--away from any sugar laden carbohydrates, processed and ultra-processed foods and towards more whole vegetables, the Mediterranean Diet and similar, is beneficial in alleviating symptoms. also, eliminating alcohol
More than 100 types of peripheral neuropathy have been identified, with 10 major categories of causation.
Your primary care physician should be working with you to rule these out.
Autoimmune disorders
Diabetes (a metabolic disorder) & other metabolic disorders
Infection
Inherited disorders
Tumors
Bone marrow disorders (my husband's category)
Toxic exposures (chemicals, heavy metals, often from workplace exposure) & or alcoholism
Physical injuries
Medication side effects
Vitamin deficiencies
And, the idiopathic form of PN, which has no understood cause.
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I have the idiopathic form of PN that has advanced to the central nervous system. It started after acdf c3-c6 surgery(which was successful in correcting most of my severe spinal symptoms). Started with a hypersensitivity to touching any metal and soon advanced to fabric, both clothing and fabric/leather furniture. I started with the metal-LTT analysis blood tests(Orthopedic Analysis) and a patch test by a dermatologist. When both were negative for all metals I was referred to a rheumatologist and a neurologist. After many kinds of blood tests and neurology tests the rheumatologist found nothing that applied but I’m continuing with the neurologist. Tomorrow is my third. Other than prescribing baclofen for muscle spasms(my pcp put me on Gabapentin) he has not come up with a diagnosis but more importantly no kind of treatment. At the second appointment he said no to PT, myofacial release massage, pain management, even water aerobics, as they could increase the damage. At tomorrow’s appointment my husband and I have decided he needs to come up with a treatment plan or refer me to another neurologist. Very frustrating and scary as my nervous system increases its hyperactivity to perceived threats.