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Sjogren’s Syndrome – Introduce yourself and meet others

Autoimmune Diseases | Last Active: Dec 9 10:31am | Replies (661)
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@destinnana

I’ve had positive ANA test as well. I was diagnosed with burning mouth syndrome and central sensitization at Mayo a few years back. I’ve been having some other skin issues and went to local dermatologist. She suspects form of lupus based on symptoms and bloodwork and mentioned taking Plaquenel. She said it had been known to help with Burning Mouth Syndrome. Has anyone taken for their and if so was it helpful and were there any issues or side effects in taking? At this point, I’m fearful to take it and waiting to see a Rhuematologist to do further testing.

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Replies to "I’ve had positive ANA test as well. I was diagnosed with burning mouth syndrome and central..."
mtnyankee | @mtnyankee | May 10, 2021

I have primary SS and have been taking plaquenil for almost four years. It was prescribed for a new diagnosis of inflammatory arthritis. Currently my tongue is cracked and burning and came to look for help. This doesn't happen often so I can't say plaquenil helps or not but my other symptoms are better than before I started. Not completely but better so it might be worth a try.

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