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Meningioma: Anyone else? I'm frightened

Brain Tumor | Last Active: 5 hours ago | Replies (202)

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@drjohevans

While I don't live geographically near you ( a state of MD resident), I am a 10yr meningioma survivor-thriver and run a nonprofit that focuses on pre and post-operative support for meningioma survivors-thrivers.

As a newly diagnosed M patient below are a few MUST dos:
1) Know the type, grade, and location/area of your tumor. These factors determine the treatment plan needed.
2) Do your research so that you have a known understanding bout this very complex brain disease. There is limited empirical scientific research done on meningioma brain tumors. Your docs will use the term 'benign' to mainly indicate that meningioma brain tumors are non-cancerous.
3) Create a list of questions to ask of the healthcare team providing your services. If you receive replies that don't sit well with you or you need more detailed responses, ask for them!
4. Always have someone with you to provide support and take notes on what is being shared with you by the healthcare team. Being very informed will ultimately aid you in deciding on your care plan.
5. ALWAYS get more than one medical opinion before deciding on your treatment options.

Go well...

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Replies to "While I don't live geographically near you ( a state of MD resident), I am a..."

This is great advice!

Our daughter has an appt next week at Mayo re a meningioma. What type of questions should we ask?