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Sjogren’s Syndrome – Introduce yourself and meet others
Autoimmune Diseases | Last Active: Dec 3, 2023 | Replies (621)Comment receiving replies
Hi Clio, I have had Sjogrens most of my life. I was called "squinty" as a teenager because I blinked so much. Do you have a rheumatologist that really knows Sjogren's? I have found eating small meals- especially at night helps. For the pain, I use medical marijuana CBD. It helps with the inflamation. I can't take the usual medications for Sjogrens as my rheumy had me tested and I have a very low immune system. You probably know that your immune system attacks itself so you have to be very careful- especially with Covid around. If you get a flare, the best thing is to give in to it and just rest. If you fight it, then it lasts longer. Besides digestive issues, are there any other issues you have developed. Good luck and keep in touch. Joan
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The "autonomic" system goes along with this. I have sjogrens overlap with Mixed Connective Tissue Disease. Brain is important as far as resilience to adapt to symptoms and to care for yourself. It is not a matter of mind over body, and not making symptoms up. Autoimmune disease, for me, means that I do not necessarily catch things more easily, but rather that I get really sick when I do. I was on Methatrexate for years; still taking Plaquenil and Etodolac, a buffered NSAID. Non-processed diet, hydration and movement matter.