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CIDP (Chronic Inflammatory Demyelinating Polyneuropathy)

Autoimmune Diseases | Last Active: Oct 13 3:46pm | Replies (312)
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@ginger3344

I was on IVIG for a year it did slow things down. But either it or the steriods they use with it caused me to start losing some of my vision. It did help the CIDP (that they now admit it was caused from the covid vaccine )
Now I am on the rituxan which is working much better , one every 3 months.
The nuerologist and Hemotoligist (sp??) Are now talking about the new shot vygart I seen the ads on TV

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Replies to "I was on IVIG for a year it did slow things down. But either it or..."
harley22 | @harley22 | Jul 31 10:36am

I am going to have my first Rituxan infusion in a few weeks.
I hope it will help me as nothing else I did gave me any relief.
I had over 8 mos of IVIG infusions that did nothing for my CIDP, tried all the routine meds like Gabapentin, etc
None of them worked either.

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