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Sjogren’s Syndrome – Introduce yourself and meet others
Autoimmune Diseases | Last Active: Sep 21 9:28am | Replies (630)Comment receiving replies
Am new to this stream but not new to Sjogren's. To even hear that someone else in this world has Sjogren's is very connecting. Am experiencing digestive problems now. No GMO seems a logical conclusion too. No nice omelets anymore either. Am interested in ll answers. Forewarned of anything is a relief.
Replies to "Am new to this stream but not new to Sjogren's. To even hear that someone else..."
Hi Clio, I have had Sjogrens most of my life. I was called "squinty" as a teenager because I blinked so much. Do you have a rheumatologist that really knows Sjogren's? I have found eating small meals- especially at night helps. For the pain, I use medical marijuana CBD. It helps with the inflamation. I can't take the usual medications for Sjogrens as my rheumy had me tested and I have a very low immune system. You probably know that your immune system attacks itself so you have to be very careful- especially with Covid around. If you get a flare, the best thing is to give in to it and just rest. If you fight it, then it lasts longer. Besides digestive issues, are there any other issues you have developed. Good luck and keep in touch. Joan
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@clio welcome to MayoClinicConnect where everyone helps everyone! We’re not doctors but we all have experiences with illness, treatments, doctors, hospitals, you name it. Let me see if some members would come back and help with your questions. Can you give @clio some advice. @cmtg. @powerofpositive @johnburns. @blindeyepug @kyjeanne ?