@joycegray1940, as long as you live? Sounds like your oncologist doesn't have much of a bedside manner. At least mine said, "Until the side effects become unbearable." which is a little better. I'm on Targrisso, so I have the potential for heart damage.
I also have leg swelling, by the way. In my case, it's because of poor circulation in my lower legs that has been there for 30 years. In 2016, I had multiple blood clots and pulmonary embolisms in both lungs. 24 blood tests later, that Hemotologist said he didn't know why that happened. I wear 20-30 mm/Hg compression socks almost every day, and they help. Plus, they look quite sexy with my shorts! lol
Lung cancer research is evolving quickly, so hopefully, they'll come up with cures for both of our types before our current medication has to stop. You'll be in our prayers.
Thanks so much for the prayers. You'll be in ours too. My oncologist DOES NOT have a bedside manner, in fact I have thought about changing doctors. The only thing is I don't know if I could get the Tabrecta with the other doctor. I am on a grant for the Tabrecta & I noticed the price is over $11,000.00 a month. I certainly can't afford that. Good luck to you.