@sarcomasurvivor - I just noticed that I had not answered your question! So sorry.
What kind of GI problems do you have now for 4 years? You must have gone through awful chemo!
I’m not quite sure what the term is for my condition. Basically, patchy areas of autoimmune inflammation in the entire GI tract. On and off more or less active. My symptoms included constant bloating, at times looking very pregnant, pain/ discomfort 24/7, diarrhea, constipation, fatigue/ at times extreme.
I was seen at Mayo. I had a few endoscopes and colonoscopies as well as MRIs and CT scans. There was always some inflammation upper or lower, not consistent to pin it down. 5 years ago it was suggested I had this very rare condition triggered by chemo years ago. Immunosuppressive treatment worked. I hope you get this a couple of months late!