I was diagnosed in May 2022. I did not have many typical symptoms, but I did have unexplained weight loss, fatigue & my neck shoulder area was stiff. My Mayo Clinic doctor decided to run tests just in case & it popped up right away. I was started on 40mg of prednisone & Actemra infusions ever 4 weeks. My inflammation was completely normal after 1 month. I was tapered off the prednisone just 4 months later but I’m still taking the Actemra infusion every 4 weeks. I’m hoping that someday I’ll be off the Actemra for good. FYI, I’m 72.