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Mucinous adenocarcinoma: Anyone treated with Tabrecta (capmatinib)?

Lung Cancer | Last Active: Jul 30 8:21pm | Replies (14)
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@joycegray1940

Thanks for the info on ground glass, I wasn't sure what it meant. My husband had lung cancer & it was removed but on his last CT scan they said he had ground glass too, maybe from COVID. I have started using the compression air boots & it seems to help my swelling. My dr. doesn't want me off of the Tabrecta. About six months ago (on my CT scan) my cancer had shrunk so I'm sure it is working, it's just the side effects. My Oncologist does not explain things very well. Sometimes I don't want the details but on the other hand I do. When I first started the Tabrecta I asked how long I would be on it & he said as long as I live. That really depressed me. Thanks again for the info. & my prayers are with you & all cancer patients.

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Replies to "Thanks for the info on ground glass, I wasn't sure what it meant. My husband had..."
Matthew K | @flusshund | Jul 30 3:48pm

@joycegray1940, as long as you live? Sounds like your oncologist doesn't have much of a bedside manner. At least mine said, "Until the side effects become unbearable." which is a little better. I'm on Targrisso, so I have the potential for heart damage.

I also have leg swelling, by the way. In my case, it's because of poor circulation in my lower legs that has been there for 30 years. In 2016, I had multiple blood clots and pulmonary embolisms in both lungs. 24 blood tests later, that Hemotologist said he didn't know why that happened. I wear 20-30 mm/Hg compression socks almost every day, and they help. Plus, they look quite sexy with my shorts! lol

Lung cancer research is evolving quickly, so hopefully, they'll come up with cures for both of our types before our current medication has to stop. You'll be in our prayers.

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