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Sjogren’s Syndrome – Introduce yourself and meet others

Autoimmune Diseases | Last Active: Dec 3, 2023 | Replies (621)
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@astaingegerdm

@peach414144 - I am so sorry that you really don’t get proper medical help. I find it also depends on where you live- if you have access to rheumatologists with wide experience. Sjogren’s is fairly well known, but not enough physicians are not comfortable dealing with it. It is one of the invisible illnesses. My neighbor has it- I wouldn’t have known by looking at her. Don’t give up looking!

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Replies to "@peach414144 - I am so sorry that you really don’t get proper medical help. I find..."
peach414144 | @peach414144 | Apr 19, 2020

Thank you for caring but I have gone to all of the doctors in my county. They are ill equipped emotionally, mentally in caring or compassion. They seem to be stressed out. There are three rheumatalogist's in my county but then again my county seems to be "slow". Mayo in Jacksonville is the fourth (in a different county). It is more "trying" to continue. I have resigned myself that when I win the LARGE lotto I will go to (hopefully) the best elsewhere. Do not worry I am doing well enough.

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