← Return to Collagenous Gastritis: What treatment(s) work for you?

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@pb50

I had microscopic colitis diagnosed about 2 years ago after a 7 month journey starting with a yersinia infection, treated with Bactrim that left a C-Diff infection and treatment for THAT, I had a colonoscopy that confirmed collagenous colitis. Budesonide was a miracle drug. I did a 9 week tapering course and went back to my life.
All was good until I had bilateral cataract surgery in April&May and was on a month long course of an ocular NSAID 4 times a day. But it’s eye drops! I know that ibuprofen is a trigger for me, as are PPIs. But my colitis relapsed and this time the Budesonide isn't working. Maybe it was the ocular eyedrops and maybe it was who knows what. But although a lot of pepto bismol capsules can give me enough relief to grocery shop or go to a Doctor appointment, it’s like having my finger in a dam.

I see my doc tomorrow to hear his thoughts. I have tapered off Budesonide so I can go in any treatment direction.

But I have an issue w/Budesonide in that it has stained my teeth really yellow. Has anyone else experienced that?? I saw my dentist today and they are calling drug manufacturer but she thinks it is intrinsic - like gray teeth from tetracycline.

This is the gift that just keeps giving. 🙄

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Replies to "I had microscopic colitis diagnosed about 2 years ago after a 7 month journey starting with..."

@pb50
I’m sorry you had a relapse. I was told after my treatment that it might relapse. So far it hasn’t, but I then developed another type of GI autoimmune inflammation- from mouth down.
I also get SIBO on and off and I get relief with Pepto Bismol. It acts as anti infectious as well as anti inflammatory.