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Sjogren’s Syndrome – Introduce yourself and meet others
Autoimmune Diseases | Last Active: Dec 3, 2023 | Replies (621)Comment receiving replies
Hello! I'm Susanne, from Florida, and have been diagnosed with Sjogrens disease for six years. It seems to be a very lonely disease, as it's nearly impossible to receive any medical care for it I'm excited to hear, and learn from others in the site!
Replies to "Hello! I'm Susanne, from Florida, and have been diagnosed with Sjogrens disease for six years. It..."
Hi Susanne, I’m from central Florida. I was diagnosed about 2 1/2 years ago. Rheumatologist has me on a small dose of prednisone and hydroxychloroquine. I think it helps the fatigue, but I still need to pace myself and not try to do too much. I can’t say that it has done anything for dry eye. I’m using restasis, but it is really expensive. Good luck and I hope you find the medical care you need.
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Yes you are correct. I am 82 and am still looking for a doctor who can help. Perhaps this is because there is a small percentage of people who have this disease. So to spend money on research for this disease will not bring in adequate money to compensate for their efforts. ???