← Return to Choosing palliative care; what is your experience?

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@babse

Hi there, I am 76 with advanced MS. My lesions are all
In my brain so I walk. However, I have incapacitating pain with no support system and frontal lobe lesions. I had palliative care— a visit once a month by two nurses to regulate my pain and medicine. The main nurse quit her job so now I have no one. I miss the chance to see faces. I rarely go outside. I. have multiple symptoms including restless leg with seizures and can only sleep about four hours a night. I did like palliative care. I do not see a neurologist due to shortage and my not traveling I have choking and swallowing issues and invontimence. Etc

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Replies to "Hi there, I am 76 with advanced MS. My lesions are all In my brain so..."

Hi @babse, welcome. I'm so sorry to hear that your primary palliative care nurse has left her position. Is there no replacement for her? What about home visits from the other nurse?

Thanks Jeff! Your help is greatly
Appreciated!

Thanks to each of you.
You rekindled my passion
For writing ‘!