← Return to Proton Therapy: any long term side effects? Any regrets?

Discussion

Proton Therapy: any long term side effects? Any regrets?

Prostate Cancer | Last Active: Jul 30 4:58pm | Replies (35)
Comment receiving replies
@edpenney

Curious. What was your Gleason score. Will have SBRT in October but on the fence with ADT. I am 4+3, PSA 5.0, contained in prostate yet 6/12 cores 4+3, 3/12 cores 3+4. Mayo and others are suggesting 4 mos. ADT yet with new research that is being debated.

Jump to this post

Replies to "Curious. What was your Gleason score. Will have SBRT in October but on the fence with..."
ozelli | @ozelli | Jul 30 4:58pm

4+3.
PSA 17.5, contained within prostate (no PSMA scan however). 4 out of 12 cores positive, 3/12 @3+4 and a single core @4+3. Cancer involvement in those cores ranged from 5% to less than 20%.
Our results are similar but also different. My PSA slowly rose over 6 years from 5.75 tp 17.5. Yours is low but that is not necessarily a positive when you have so many cores @4+3.

I was willing to do a short course of ADT if recommended but to my surprise, the doc said it wasn't necessary as studies didn't support it. I didn't debate him on it.
You have 9 out if 12 cores positive so I guess that is why you are being recommended ADT. Not an easy call to make.

Some seem to tolerate it well, others struggle. 4 months is not a long time but you need the right mindset particularly with exercise. If it were me, I would likely do it.

VIEW AND REPLY