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DiscussionSjogren’s Syndrome – Introduce yourself and meet others
Autoimmune Diseases | Last Active: Dec 9 10:31am | Replies (661)Comment receiving replies
Replies to "I have read that some of the main symptoms are pain in the shoulders and neck..."
Hello @elmay,
While I don't have much experience with this particular disorder, I have had lots of experience in getting hard-to-diagnose symptoms handled. Bringing in a list of your symptoms and research you have done makes you a diligent patient, not necessarily a know it all.
If you present your information (symptoms/research) in a clear, logical manner, respecting the doctor's background and education, your presentation should go well. I have done it a number of times (even creating graphs of echocardiogram changes) and my doctor is always very respectful of the work I have done.
If your doctor is not respectful, then that would be an issue where you might want to seek a second opinion.
@elmay, I agree with @davelt103. You should discuss the symptoms with your doctor. You know better than a doctor what your symptoms are and it helps them when you can accurately describe how you feel. It might even help if you can keep a daily log on the symptoms and pain levels so that helps you describe it to your doctor.