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Sjogren’s Syndrome – Introduce yourself and meet others

Autoimmune Diseases | Last Active: Dec 3, 2023 | Replies (621)
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@becsbuddy

@elmay I see that you aren’t a new member. Is the Sjögren’s new for you? I’m going to ask @rarelybees2889 and @zenk and @peach414144 to join the conversation and see what help they can offer. It sounds like having a very dry mouth at night is especially irritating for you. Have you tried any of the artificial salivas from the drug store? Maybe the other members have good suggestions.

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Replies to "@elmay I see that you aren’t a new member. Is the Sjögren’s new for you? I’m..."
peach414144 | @peach414144 | Apr 5, 2020

I probably have had Sjogren's all my life but for the last fifteen years it has been very active. I have tried all of the different medications but of to no avail. At this stage in my life (82 years of age) to try other medications would interfere with many of the other medical problems I have. I thank you for thinking of me. It is kind of you to help myself and others and you are appreciated says Peach with a smile on her face ready to face the day.

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Langold | @rarelybees2889 | Apr 11, 2020

Hi
Just weighing in, sorry its late. Nice to meet you all. Diagnosed about seven years ago. Lots of other autoimmune issues!
How many of you are on Plaquenil? This situation with the shortage really angers me....I didn't realize this drug could cause heart problems! What is everyone doing for dry eyes and mouth? Its sad that many people who don't understand see SS as ONLY dry eyes and mouth...

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Ingegerd Enscoe, Alumni Mentor | @astaingegerdm | Apr 12, 2020

@elmay @becsbuddy - during the years when I had autoimmune gastrointestinal inflammation I started having very dry mouth and eyes. I was tested a couple of times for SS but negative. It was still thought of as a SS autoimmune disease. I would have red bumps inside lips and on palate, tender salivary glands. After finishing my immunosuppressive treatment, the symptoms disappeared.
However, I ended up with enamel damage to my front teeth, they became almost see- through. Anyone else had a problem with the teeth?

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