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Sjogren’s Syndrome – Introduce yourself and meet others
Autoimmune Diseases | Last Active: Dec 3, 2023 | Replies (621)Comment receiving replies
I was diagnosed with Sjogren’s by lip biopsy. I wake up during the night with my tongue stuck to the roof of my mouth and use a water bottle to take in some water. I can’t take either of the meds that increase saliva because they make me sweat so much I have to change my PJs. I use Restasis twice a day for dry eyes. That works for me. I take Plaquenil for a high CK level. My other issues are GERD, osteopenia, fibromyalgia, and some others I consider minor. I have a lot of sensitivities to medicines. Fortunately, I can tolerate Lyrica. Exercise and positive attitude are my best meds. Sometimes they just aren’t enough.
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Could someone please tell me how polymyalgia is is diagnosed? Is there evidence in lab work, or is the diagnosis a less exact process? Thanks.
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@elmay I see that you aren’t a new member. Is the Sjögren’s new for you? I’m going to ask @rarelybees2889 and @zenk and @peach414144 to join the conversation and see what help they can offer. It sounds like having a very dry mouth at night is especially irritating for you. Have you tried any of the artificial salivas from the drug store? Maybe the other members have good suggestions.