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CLIPPERS: Looking to connect with others

Autoimmune Diseases | Last Active: Dec 7 10:15pm | Replies (323)

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@donnyboy

To add to this, I had an appointment with my neurologist today and she said she just recently discussed the PET-CT and MRI results with the NYU Langone doctor who arranged them. Both are in agreement that I seem to have entered a stable period in which a daily dose of 20mg Prednisone is serving me well. They are both inclined to keep me on this, given my current condition, my age, my medical history, etc, but will try something else if new symptoms develop or the stability goes away. I am quite content with this, although it does mean accepting that what has caused my demyelination disease remains a mystery.

Don

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Replies to "To add to this, I had an appointment with my neurologist today and she said she..."

Hi Don!
That is so good that you are stable! I am too!
On 20 mg daily as you are. In reading through all the messages, most people are on 20 mg. That seems to be the magic number for this disease.
Yes, it is hard to accept that they cannot pin down what caused this.
I was able to work out last night. Working from home today, thankfully. So far feel good.
Enjoy the rest of your week!
Sue