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Looking for help with radiation fibrosis; Tips?

Head & Neck Cancer | Last Active: Aug 6 1:23pm | Replies (13)
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@josk

hey ... glad that you have been offered palliative (I reside in Toronto and not aware or not been referred to such a program) - believe there is no such program in Toronto.
With the late effects of radiation in 2020 - it very much affects my lifestyle - in that I am not comfortable in meeting up with friends and family due to my 'invisible disabilities' - dysphagia, dysarthria, hearing.
Am doing my best to be 'ok' on my own meanwhile - and also doing my best to adapt to these late effects of ratiation.
ciao & take care!

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Replies to "hey ... glad that you have been offered palliative (I reside in Toronto and not aware..."
Colleen Young, Connect Director | @colleenyoung | Aug 4 3:26pm

@josk, Princess Margaret Cancer Center/UHN in Toronto has a fabulous Palliative Care center and team. You can find out more here https://www.uhn.ca/PrincessMargaret/Clinics/Palliative_Care

Palliative care teams include social work and support for the entire family as well as yourself as the patient. You may find it helpful.

The late side effects of treatment such as dysphagia, dysarthria, impaired hearing make interactions with others tough in so many ways. Sometimes withdrawing is just easier.

Josk, have you had a chance to work with a speech language specialist for swallowing and speaking issues? What hearing supports might improve the hearing impairment?

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