← Return to Inability to swallow timeframe: Can one relearn to swallow?

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@josk

Hi Sue
I nasopharyngeal cancer - stage 4 - in 2006. I was on feeding tube during 7 weeks of radiation and after the entire treatment and with time to heal, I was almost back to norm.
But during COVID pandemic and restricted to working from home (live alone) - I suddenly find that my speech was very much impaired and same goes for swallowing. I was absolutely in a panic mode. Connected with my oncologist and ENT team - was diagnosed with severe neck fibrosis and dysphagia / dysarthria - long term side effects of radiation!!
Like you - I have been doing dysphagia exercises and whatever to get my neck, jaw & mouth exercises.
With this late effects of radiation - it tends to change my lifestyle around - i.e. issues with speech and hearing, and not able to swallow food properly (most times I have to spit out whatever gets stuck in my throat).
Meanwhile, am doing my best in exercises to prevent deterioration of these side effects, and trying to be 'ok' on my own (it's a challenge to have friends and/or people understand and aware and accommodate 'invisible' disabilities!)
Keep well !

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Replies to "Hi Sue I nasopharyngeal cancer - stage 4 - in 2006. I was on feeding tube..."

@josk this is a perfect example of us not using muscles and they atrophy from lack of work. I have facial muscle paresis from my cancer surgery and spending time alone without talking, smiling, facial expressions results in a lack of ability to use those muscles. That also emphasizes the importance of therapy to rebuild the muscles with proper exercises. Swallowing and speech therapy is an important part of long term recovery of these skills. Patients must often ask their doctors for referrals for this followup care as they often do not see the patient enough after surgery to see the struggles. Thank you for sharing your story as an important reminder.