1. < Prostate Cancer

Just diagnosed gobsmacked looking for advice

Posted by mhreed39 @mhreed39, Jun 24 8:30am

Offically diagnosed with prostate cancer 6/21/24. PSA is 15.25 (up from 2.8 six months ago). PI-RADS 5 score from MRI.
Biopsy score was Gleason 8 (4+4), Grade 4. 12 of 16 cores involved. Cribiform pattern present. Yes to Extraprostatic extension and Perineural Invasion. PMSA PET scan is being scheduled.
Have met with a surgeon who believes surgery is the best option. He will be taking both nerve bundles and lymph nodes. I have an appointment with a radiation oncolgist next week to get a second opinion.
At this point I know my inital decision is surgery v. radiation but with a cancer this aggressive I worry that a second or even more rounds of treatments are in my future and how my initial decision effects my later options.
Looking for advice or your experience.

Interested in more discussions like this? Go to the Prostate Cancer Support Group.

mhreed39 | @mhreed39 | Jul 29 8:22am
In reply to @kam23 "My PC when diagnosed was Gleeson 10, stage 4, with some local metastases and one metastasis..." + (show)
@kam23

My PC when diagnosed was Gleeson 10, stage 4, with some local metastases and one metastasis to a lymph node in my chest. Most docs won’t do chemotherapy because they cite a study saying it’s not effective. However, the study did not include doing multiple steps in close succession or simultaneously, which is highly effective. I switched my care to doctor Eugene Kwon at Mayo Rochester, immediately started Lupron, had Docetaxel chemo, then eternal beam radiation. His goal was to get me clear and keep me that way for at least 10 years. I was clear within 8 months and have been clear for 1.5 years. A friend had PSA of 4500 (yes), many metastases and is now clear. If you want to live, I suggest you watch his videos on YouTube. Search under his name and prostate cancer. There should be about 4 videos. My wife found these and saved my life.

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Thanks @kam23 I will look those videos up.

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westernflyer | @westernflyer | Jul 29 10:17am
In reply to @anosmic1 "I'm not supposed to see my doctor for results until 8/7, but the hospital sent me..." + (show)
@anosmic1

I'm not supposed to see my doctor for results until 8/7, but the hospital sent me results and I see the word adenocarcinoma, so I assume I'm facing a cancer diagnosis. I'll reach out to the doctor and some others on Monday to make sure I'm not jumping to a conclusion. Patience may be a virtue but it doesn't feel like it this morning.

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The next step perhaps is a PET scan which will identify the location olf the cancer; then a biopsy to determine Gleason and "T" level. Obtain all the facts, then proceed with decisional options.

This site is excellent for exchanging information. Good luck

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