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Sjogren’s Syndrome – Introduce yourself and meet others

Autoimmune Diseases | Last Active: Dec 30, 2024 | Replies (663)
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@geneseos

hi, all, I have sjogrens with small fiber neuropathy, no meds helps and I am on I v. I g , no changes yet, and it has been seven months, anyone else

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Replies to "hi, all, I have sjogrens with small fiber neuropathy, no meds helps and I am on..."
zenk | @zenk | Mar 23, 2019

Hi Geneseos

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zenk | @zenk | Mar 23, 2019

Hi Geneseos, I have Sjogrens too. I have neuropathy in my feet and lower leg. I am going to a Neurologist in April . How did you get your diagnosis of "Small Fiber Neuropathy" . What are your symptoms? Were there any conclusive test for the diagnosis.
I have been taking Gabapentin at night and pain killers in the day. Do you take anything other than IVIG ?
Wish the IG would help you. Have you looked at any of the CIDP literature? Thanks so much, Zenk

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