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← Return to Proton Therapy: any long term side effects? Any regrets?
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Proton Therapy: any long term side effects? Any regrets?
Prostate Cancer | Last Active: Dec 7 8:08am | Replies (39)Comment receiving replies
What I have noticed post proton (12 months out) is arthritis-like activity in hands. Active person, 63, nothing else going on medically but struggling to open a jar of peanut butter on occasion. Maybe a coincidence or my imagination.
Replies to "What I have noticed post proton (12 months out) is arthritis-like activity in hands. Active person,..."
Interesting, I had proton therapy 19 months ago and right now I am going thru hell with the same symptoms. The docs can’t figure it out yet. If I ask they say no, not from that. Bullshit. It’s something. Since ending treatment in May ‘23, I have been experiencing a lot of different “issues”, and it’s only because of this site that I’m seeing this, not only myself but others as well. Right now they are looking at carpel tunnel, my x-rays all look clear to me. The biggest issue I have, is not being taken seriously when I ask. I just get a look and “NO”. Well, it’s definitely something. Right now both hands are useless. Can’t use them hardly at all and awaiting more tests.
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Curious. What was your Gleason score. Will have SBRT in October but on the fence with ADT. I am 4+3, PSA 5.0, contained in prostate yet 6/12 cores 4+3, 3/12 cores 3+4. Mayo and others are suggesting 4 mos. ADT yet with new research that is being debated.