@bijou68 - Hi! Clobetasol is to manage the Lichen Sclerosus that can (& has, in my several cases) lead to Vulvar Intraepithelial Neoplasia (VIN), which is a precancerous condition that can lead to the Squamous Cell Vulvar Cancer.
I am still applying the Imiquimod cream 3x/wk, and the Clobetasol on the other days to hopefully manage/abate any further VIN developments. Though the way it has gone this year, "out of the blue" after 40+ years of watching my skin condition, I am told it will need to be checked every 6 months for the rest of my life. That is fine, if that is what it takes.
I still have no burning from the Imiquimod, and my oncologist says that is OK - with all the caution I'd received about it burning, it worries me that it is really being effective. But I will find out when I return for the 2-month check w/the oncologist in early Sept.
I am not suggesting this, but having had the direction from the oncologist to have the laser ablation (that was the 1st surgical procedure I've had for this, it was in Feb. this year), I wonder if that is an option in your circumstance, rather than the excision being the only option for each spot?
Again, not suggesting it, but maybe worth inquiring about? And can you get to a gynecological oncologist for further insight if you haven't yet?
Best wishes, and let me know.
Hi Brandy: I had my visual by my gynecologist and she said that this time around I did not have a manifestation of Paget of the Vulva like I had a year ago and two years before that. I have to go back every six months for the rest of my life. So, I appreciate a break this time. She seemed to think that I was responding well to Imiquimod. I did recall reading your text that the second time, last year, that I did not have the burning and the itching was not bad and I remember that I also thought maybe the cream was not working well. But it did, so maybe that will help you. So, I am taking it one day at the time. I think more and more we will see new cases of this disease and maybe that will excite researchers into researching new medications or procedures... Let's hope.. Let's keep in touch