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Cryoglobulinemia Vasculitis Question

Autoimmune Diseases | Last Active: Jul 30 6:13pm | Replies (12)

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@1kerrilyn

Does anyone have cryoglobulinemia vasculitis (severe attack coming w in 6 hrs of having both lower legs and fingers amputated) CIDP/CIPD ?

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Replies to "Does anyone have cryoglobulinemia vasculitis (severe attack coming w in 6 hrs of having both lower..."

No & I'm sorry I can't be more helpful to you. I don't have a doctor anymore that I even see as there aren't any in my area trained in this. I had Hep C & did the treatment for it & am clear of that virus but still deal with the Cry Vas. It disrupts my life terribly pain wise & not being able to stay warm.
My gosh, is the loss of your limbs caused by this terrible disease? I'm sorry, that isn't my business...
But hey, if you'd like to talk anytime I extend my hand in friendship..
Be well!
Bonnie