Hi anitaxblack339,
I empathize with you since neither my (former) neurologist nor my Movement Disorder Specialist provided me with ANY information about PD other than a diagnosis. My survival instinct kicked in immediately and I began online research for several months. You must advocate for yourself and learn as much as possible about PD - ask your doctor(s) for information too. It's a complex disease that you must manage yourself and it manifests differently for everyone. My current neurologist is a die-hard scientist and doesn't believe in any treatment that hasn't been proven. I accept his education and expertise, but I search beyond his narrow view. I've found too much useful information to list here, unless you'd like it. For starters, exercise is very important! On YouTube you can find many quality exercise programs geared for those with PD. I take Tai Chi, Chair Yoga and Water Aerobics. BTW, I was diagnosed with PD March 4 and I don't take medications (yet).