← Return to CIDP (Chronic Inflammatory Demyelinating Polyneuropathy)

Discussion
Comment receiving replies
@artemis1886

My hands are numb! I understand what you are going through. I keep cutting them while cutting carrots and onions to look down. And blood everywhere. Then go to ER to get stitches. IVIG does not cure the neuropathy but it slows down the progression of the disease. According to the medical journal of neurology takes 8 months to one year for it to work. . You have to remain on it for life. If you go off of IVIG it can fast track your symptoms. I have heard of Rituxan being used to treat RA and Lupus and other diseases but not neuropathy. You are not the first person trying it for neuropathy it’s an off label use my understanding.

Jump to this post


Replies to "My hands are numb! I understand what you are going through. I keep cutting them while..."

I was on IVIG for a year it did slow things down. But either it or the steriods they use with it caused me to start losing some of my vision. It did help the CIDP (that they now admit it was caused from the covid vaccine )
Now I am on the rituxan which is working much better , one every 3 months.
The nuerologist and Hemotoligist (sp??) Are now talking about the new shot vygart I seen the ads on TV